Roche İlaç Türkiye Announces Meaningful Partnership

Roche Pharma Turkey joined forces with Türkiye Hemofili Derneği ve Hemofili Dernekleri Federasyonu, one of the country's most important civil society organizations on this matter, to support the fight against hemophilia, a rare genetic blood disorder requiring lifelong treatment, and to provide accurate information to patients and their families. Emerging from the idea of helping individuals with hemophilia overcome the difficulties they face, the Hem de Nasıl project aims to highlight that hemophilia is not an obstacle, but a companion on the journey. In the campaign, individuals with hemophilia, who face restrictive remarks throughout their lives such as 'you cannot play, you cannot succeed, you cannot do it' due to bleeding risks caused by hemophilia, are reminded that by understanding the disease well and being careful, they can overcome obstacles in their lives.

Website visitors can access information they seek under headings such as hemophilia and genetics, hemophilia and joint health, treatment approaches in hemophilia, aging with hemophilia, and being a parent of a child with hemophilia.

Türkiye Hemofili Derneği Chairman Prof. Dr. Bülent Zülfikar commented on the matter as follows: "With this project, we aim to tell approximately 9,000 individuals with hemophilia in our country that 'hemophilia is no longer an obstacle, but actually a companion on the journey.' Individuals with hemophilia, who face permanent limitations when treatment and follow-ups are not handled properly, can find detailed information on topics they need on the hemdenasil.com platform so they do not fall behind in life and can live their lives to the fullest like everyone else." Hemofili Dernekleri Federasyonu General Chairman Prof. Dr. Kaan Kavaklı provided the following comments regarding the project: "Website visitors can learn answers to many different questions that families should pay attention to during childhood, ranging from school and sports life to an adult's work and family life, directly from experts in this field. Patients and their families experience the convenience of accessing every type of detailed and accurate information they need on the website under different headings such as Living with Hemophilia, Hemophilia in Children, Hemophilia in Advanced Ages and Practical Information from 'a single channel.'"